Need Support
As you navigate the complexities of uveal melanoma, we want to assure you that you are not alone. Together, we have gathered a wealth of resources designed to offer you comprehensive support and vital information. Our aim is to help you connect with the broader community as you face the challenges ahead.
Warm regards,
Dr. Lim and Dr. Giblin
AOMA Australian Ocular Melanoma Alliance
AOMA Summit videos
Starting from our inaugural 2019 meeting until the newly released 2024 videos.
The AOMA Summit hosts videos from meetings dating back to 2019, offering insights from experts in the field. Patients can access valuable information on the latest research, treatment options, and patient experiences, keeping them informed about advancements in the management of uveal melanoma.
Understanding Ocular(Uveal) Melanoma : A guide for people affected by eye cancer
This booklet from The Cancer Council provides comprehensive guidance, crafted and reviewed by Australian experts in the field. It aims to help you understand ocular (uveal) melanoma more thoroughly.
Inside, you'll find essential information about the disease, various treatment options, and strategies for coping, making it an invaluable resource for patients and their families.
OcuMel Australia and New Zealand (Ocular Melanoma Support) | Facebook group
This Facebook group serves as a patient led support platform for patients and caregivers. It facilitates connection and communication among individuals affected by ocular melanoma, promoting community support and shared experiences. Patients can easily reach out to the admin, Susan Vine, for assistance in joining.MASC Trials for Ocular Melanoma | Facebook
News, updates and other forms of melanoma posts.
The MASC Trials page offers updates on ongoing research and clinical trials related to ocular melanoma. This is particularly beneficial for patients interested in exploring new treatment options and staying abreast of developments in melanoma research.
Ocular Melanoma Cancer Care Co-ordinator | Mea Pimentel
Mea Pimentel at The Kinghorn Cancer Centre offers patients direct access to specialised care coordination. She provides personalised assistance with treatment pathways, resources, and support services throughout the patient care journey.
Mea is available from Monday to Friday, 8:00 a.m. to 4:30 p.m.
The Kinghorn Cancer Centre, St.Vincent's Hospital
370 Victoria Street Darlinghurst NSW
Lifeline
With a 24/7 helpline and text support, Lifeline offers confidential crisis support. This service can be invaluable for patients experiencing emotional distress, allowing them to talk to someone trained to help them through challenging times.